When we were first told Jace had suffered a stroke before he was even born we felt a wide range of emotion. We were confused because we didn't even know this was possible. We were sad because we were told so many bad things right away and it's nothing you ever want to hear about your new baby. We were scared because we had so many unknowns about what the future would hold. Most of all we felt incredibly alone. We didn't know who to turn to for help and advice. We had friends and family but nobody had ever experienced this. We only had the doctors- who weren't the most positive people.
Although we've been fortunate that Jace hasn't needed extensive medical treatment we know this isn't always the case. We decided to have this event to raise money that will help those families with expensive medical needs while at the same time raise awareness about pediatric strokes.
If we can help it, we never want another family in a similar situation to feel alone like we did.
~Matt and Shiloh